Huntington’s Disease Successfully Treated!

Welcome to the Plant-Free MD podcast with Dr. Anthony Chaffy, where we discuss diet and nutrition and how this affects health and chronic disease and show you how you can use this to optimize your health and happiness both mentally and physically. Hello everyone. Thank you very much for joining me for another episode of the Plant Freem podcast. I'm your host Dr. Anthony Chaffy and today I have a very special guest. I've been looking forward to speaking to uh Cecilia Cassinetta who is uh well has has an amazing story that I hope will be very inspirational to uh people that are suffering with neurological issues specifically Huntington's disease. This is something that I was certainly taught in in medical school in genetics that this had a nearly 100% penetrance, meaning that if you had the genetics for Huntingtons, you basically were going to get this and it was going to be progressive and uh very serious. So, um to get any sort of sign of hope for this treatment because we have no real treatments in modern medicine for Huntington's any sufficient degree is really exciting. So I'm very excited to uh have Siccilia on. Thank you so much for coming on. >> Well, thanks for having me. This is a pleasure indeed. >> Yeah. So So please, you know, uh can you tell us a bit about about your story and um and and what how you're doing? >> All right. Well, um, in on November 14th, 2014, I was diagnosed with Huntington's disease. >> It, um, I was in a wheelchair at the time and seating multiple times daily. So, my I wasn't doing well. Um, at that point, um, I progressed over the next year or so. I became wheelchair and bedbound and I couldn't feed myself. I couldn't dress myself. I couldn't count. I didn't know when my husband left for the day. Um and then just was panicked after he left and found that he was gone. So, it was kind of like a lot of that that kind of um really heavy um symptoms that I had. I had really bad movements in my legs um and really bad movements in my arms and then I had movements in my neck and my face as well. So, it was pretty much all over my body. Um, it started in my hands. Um, but it progressed to my legs and then I couldn't really walk without falling. So, then I had to be in a wheelchair. So, it was it was pretty bad there for a minute. I'm not going to lie. >> Yeah. >> Yeah. And then and how how rapidly did that progress since your diagnosis? Um I would say um until about uh 20 2018 I had issues. They were uh my husband was considering having um some care into the home because of all my issues. I couldn't really be alone and things like that. So uh with the seizures, it really did it it made it a lot worse. It made it a lot worse. And they say that you're not supposed to have seizures with Huntington's disease, but I sure did. >> There are some people that do that I've since found. But um it's just it was it was devastating. >> Yeah, >> it was devastating to come home with that diagnosis for sure. I had I have two daughters, >> so it was devastating for me as a mother and then devastating for me personally as well. >> Yeah, absolutely. So, so that continued to progress. And then were there sort of um cognitive issues that went along with that? You said you didn't know when your husband was sort of there or gone. It could be very disorienting, very confusing obviously. Um how how did that affect you? >> Oh, I was just mentally I was just I I didn't have any hope really. It was just it was the hardest thing to deal with and I had to find hope again. And I feel like that's exactly what helped me, you know. Um, it's interesting that I actually self diagnosed myself with Huntington's disease before I saw my doctor. I had gotten all my medical records and looked at them and I went in to see the doctor and he told me he wasn't sure what I had, but he didn't think I had Huntington's disease and told me that it was psychosmatic. And I said, "Prove it." Mhm. >> So, I got the blood test and it came back positive. And it just um from there on I just felt like I had no hope. And it wasn't until I watched The Secret, which is about the law of attraction, that I really started to think a little bit differently about my situation and tried to I was determined to figure out a way even though there was no cure. >> So, that's what I did. >> Yeah. And so how did you come across u you know a carnivore diet? How did how did you you know try come to try that to see what that would do? >> Well, it really started with um I I had found this book online. Um it was by Lydia EPS. It was called Candida and Parkinson's disease. and she talked about basically about how her husband had um Parkinson's disease and she had acquired some of the same kind of I guess symptoms and um she was a microbiologist and she determined that it was with a doctor that she worked with that it was really her diet of vegetables that was causing the candida overgrowth which made a lot of sense to me at the time because I had a lot of candida. I was I had a a lot that would come out and I had to work on that for the next year or so. I did natural methods. Um I did diet tomaticious earth. I did coffee enemas. Um and that's really what helped me get out of my wheelchair the most between that and yoga. Um I was on the Gerson diet at that time. Um but it wasn't sustaining me and my seizures weren't gone. So, we ended up moving to a legal state for cannabis because cannabis oil was supposed to help with seizures and I wanted to go the more natural route. By that time, I I wasn't on any prescription drugs whatsoever. I'd gotten off everything I could get off of. >> And um when we went to Colorado and I tried the cannabis oil, it did not work. And I tried it for a couple years. It didn't work. And then finally, I found Dr. Natasha Campbell McBride who uh does the GAPS diet. >> I found her information and uh her talks and I found them very informative and very convincing. Took me about six months to make a decision that that's what I really wanted to do. Um but I started her uh GAPS no plants diet >> and within four months my seizures stopped. >> Nice. Yeah. Very good. And I never looked back because I was just like, "No, I'm not getting that again." >> And then everything besides the fact that I was walking but not really walking well because of how bad the seasons had been when I was in Colorado. Um, so after that, after the diet changed, then I was able to hike. I was able to uh really make vast improvements. There was no longer any talk of any help coming into the home. I didn't really need it. >> I was doing so much better. >> Yeah, that's really good. Um, yeah, I mean that's that's the thing. You know, I've spoken to to Dr. McBride. She's great. And um, you know, the GAPS diet, you you eliminate out so many things. The same idea that these things that you're eating can cause problems in your body, which is 100% true. And then doing a plant-free GAPS diet, that's pretty close to carnivore, you know, if not if not full on. than doing >> well. Yeah, that's true. Absolutely. >> Um but then then after I I tried that diet, um I found Dr. Ken Berry >> and then I was like, "Okay, I'm going to go straight carnivore." So there was no like like for the no plants diet um it was it was more like I guess for the boflow and everything to drink a little bit of sauerkraut juice but I didn't eat any of the plants themselves and then when I went strictly carnivore then I really started improving >> after that. >> Okay. So you you saw even more improvement at that point. >> Yeah. Really? >> Yeah. even more improvement. Um I it wasn't until 2020 that I um ended up going back to the doctor. Um and when I went back, I discovered that all of these diseases that I had had because it wasn't just Huntington's disease were eliminated simply with the diet. Mhm. >> So the list is long >> of different diseases that I had and all of them were miraculously gone. Doctors told me at that time because it was a new doctor, they didn't believe me. >> Yeah. Yeah. That you had everything. >> Yeah. >> Yeah. And they may not have even believed you had Huntington's, you know. I mean, they looked at you like, well, looking at you and it doesn't look like you have Huntington's. >> Yeah. >> Yeah. I was that much more improved. >> Uh my husband actually um uh helped me with a lot of these different things, but I no longer had hypothyroidism. I had hyperarathyroidism thyroidism with high calcium and cysts. >> Um I had NFld. >> Uh I didn't have any It's like everything just was gone. Um, I had a CPAP at one point. I no longer used a CPAP. Uh, I didn't have insomnia anymore. I didn't have asthma. I was diagnosed with bipolar ADHD. I no longer had symptoms of those. Um, I also was IBS free. Like, I didn't have any problems eliminating. And then the first thing that really started all of these things way back when I was in high school was chronic bronchitis. I had it for years. I haven't had it. I haven't been sick in four years. It's been wonderful. >> Yeah. Nice. It's really good. >> Well, you know, that that's the thing, too. You know, I I I've always um put out a lot of hope that that a lot of these Well, I've I've seen a lot of neurological issues massively improve. U certainly uh things like multiple sclerosis, we've even seen like regrowth of the of the myin sheath and the and the nerve fibers. uh that are damaged in in MS. Um you know TBI, we have studies on that showing that improves. We have 100 years of clinical evidence showing that ketogenic diets help with seizures and epilepsy. So that I mean that's that's just um a massive tool that we can use to to help seize whenever anybody's having seizures. And obviously if it if it's going to help certain neurological conditions, there could be a common mechanism that it helps other neurological conditions as well. And so I'm I'm just very excited to see uh your case when we started conversing in the comments of my my post um that uh that that was your experience. I've had a couple patients with well they like uh that I've consulted with that uh they weren't my direct patient but you know we talked they were interested in doing a carnivore diet for Huntington's disease and so I was helping them sort of optimize their their their approach um to give it the best shot and unfortunately I haven't been able to get followup from them past you know the initial period when they were you know making early improvements but that could have just been the normal improvements that everybody gets on a carnivore diet when you're optimizing your nutrients and you're getting rid of toxins. I mean, that's really all it is. You're just eliminating out things that are bad for you and just focusing on on the nutrients, the essential vitamins, minerals, proteins, and fats in the right proportions and bioavailability that that you need for optimal health. And so, everybody's going to improve, you know, just by doing that, optimizing nutrients and getting rid of toxins. but was this going to help the Huntingtons itself? And that was something that that I was really curious about and I was very optimistic about, but really needed to, you know, needed to get more data on that. Um, so have you seen other other people? I mean, there's obviously people in hunting with Huntingtons that speak to other people with Huntingtons. Have you spoken to others? Have they tried this as well? >> I have spoken to others. I have people come and talk to me all the time. they find my channel on YouTube and they come and they ask me questions about how I'm doing it and etc. But I do have some people who have moved more into eating more meat. But it is a difficult transition for people who are in serious pain to under properly understand what really needs to happen because the pain is astronomical if I'm being real. >> Okay. And um I I have though had um a lot of success in helping other people do much better like people with fibromyalgia, people with lupus, people like I had this uh gentleman who was at stage three kidney disease and I helped him reverse it kind of because I'm a medical intuitive as well. So I kind of help people kind of reverse their symptoms and I have people all the time who come to me but specifically Huntington's disease. No >> uh I do have people who are attempting to go down that path. I have seen studies for ketogenic diet and Huntington's disease which have been very successful and being able to reverse cognitive problems as well as as mental health problems. Right? Because >> Huntington's disease kind of encompasses a lot. It's like having um schizophrenia, bipolar, ALS, and Parkinson's all at the same time. So, it's a it's a lot for people to deal with. Um and when I try to go into Huntington's disease groups and tell them that I'm no longer in a wheelchair, I get some backlash if I'm honest. Like, that's not possible. That's not true. Huntington's disease can't be cured. I said I didn't I'm saying I reversed the symptoms and um so it's kind of like that but I do have some people who do come and ask me questions and who have started on the diet but I haven't heard any more feedback from them as to whether or not it's been successful for them. >> Okay. Well, I understand the um the concern that people have because they, you know, they they don't want they don't want themselves to get false hope, you know, you can't say that. That's just, you know, uh you're probably trying to sell something or something like that. That's another one like >> I don't know what I don't sell anything. >> Yeah. Well, that's it. I don't know what we're trying to sell by telling you don't, you know, don't eat certain things. We're not sell We're not selling you the other things, >> you know, and you don't you don't need my cookbook to go go do this. just just cook a steak and you know get on with it >> you know and um so but you know a lot of people are sort of coming around to that and so hopefully others are I know in the ALS sort of circles and chat rooms and things like that that this is becoming more um you know you know tried more and more consistently and there are people that have had uh very good results with that. So hopefully that starts, you know, you know, infiltrating the the Huntington's community as well. And of course, you have it has to start somewhere. So, you know, I'm glad that you're out there, you know, making videos and doing posts and and things like that showing that that this can be done because I mean, because you have you have before and afters. I mean, you have, >> you know, you have, >> you know, videos, pictures, things like that of you before and how you were and then and then in your recovery as well. So, that's that's very powerful stuff. Hey guys, just want to take a second to thank our sponsor, Carnivore Bar. I don't promote many products because honestly all you need to be healthy is to just eat meat, but for those times that you're out hiking, road tripping, or stuck at work and you want nutritious snack that is just meat, fat, and salt if you want it, the Carnivore Bar is a great option. So, I like this product not because it's just pure meat, but also because I want the carnivore market to thrive as well. And the more we support meat only products, the more meatonly products there will be available in the mainstream. So if this sounds like something you'd like to get behind, check it out using my discount code Anthony to get 10% off, which also applies to subscriptions, giving you 25% off total. All right, thanks guys. >> Yeah, I was I was going to ask you as well and and forgive me if I um I missed this part when we were talking about you got the genetic testing for Huntington's, right? Did they did they tell you how many sort of base repeats you had? Um because sometimes that can signify how how aggressive it is. >> They did. Um so I'm I'm termed it's called intermediate Huntington's disease. So I have 29 alals. >> Okay. >> And my doctor told me in the office that that doesn't mean I have Huntington's disease. But my sister also was diagnosed and so she was diagnosed with intermediate Huntington's disease. Mhm. >> Um, right in my doctor's office, he's a very famous office, a very famous doctor. He writes papers and things like that. And he had a big old paper on the wall about a man >> who was diagnosed with Huntington's disease postmortem with 29 alals. >> Yeah. >> So, I feel like it's possible. I definitely had all of the symptoms of it. Um, in my personal opinion, um, but it was just kind of like that. And so when people hear um, how many alals I have, they're like, "Oh, that's why." >> But I don't fully believe that's true. Personally, I do believe that all of the drugs that they have you on, that they put you on for depression, bipolar, etc., everything. I mean, I was taking handfuls of drugs >> three times a day at one point from my doctors. The all these drugs cause nutrient deficiencies. >> Every single one. And so I feel like that added to and compounded the problem. That's not to say that I was eating well to begin with. I was eating processed food. I was eating a lot of fruits and vegetables before I learned the dangers of pesticides and fungicides and all of that on plants and before I understood about the anti-nutrients in plants as well. You know, this was all way back when all of this kind of started for me, but it snowballed because there were they were putting me on all of these drugs that were causing nutrient deficiencies. Like for example, one nutrient deficiency that comes up a lot is CoQ10. >> I can't tell you how many different drugs I took that that say now that I know say that it causes that nutrient deficiency. So is it the drugs or is it the fact that you know is it a combination of things because I feel like Huntington's disease is also it is being studied for autoimmune although they haven't come to that conclusion. I fully believe that that's true. It's an autoimmune disease that's made worse by the drugs that they provide for patients. >> Yeah. And so yes, there's a genetic component just like MTHFR, right? But at the same time, if we didn't have those nutrient deficiencies, then the RNA could replicate properly. And that's why I feel like carnivore diet works because it's really about epigenetics, taking away those toxins and putting in those nutrients that you really do need. Mhm. And yeah, and and that's the whole point is that you can have a genetic predisposition and environmental trigger, but without both of them at the same time, you don't you don't get the problem. And you know it could very well be that there are when we think of Huntington as having you know near 100% penetrance except when you get sort of lower down in in the alals it it may or may not um present and certainly may not present as as aggressively but there are studies that actually show that people with you know your amount of alals have extremely aggressive rapidly pro progressing Huntington than others that have far more that would be considered you know the very extreme range. are very uh the ones that you would expect to have a very rapidly progressing serious course actually have a much more mild course. So we know that there are some sort of environmental factors that that come into play. And if you aren't ex exhibiting these sorts of features, is there a reason to get tested in the first place? Not necessarily. Right? So there could be people out there that have the the genetics for Huntington but have never been tested because there was no need to. So that's the other thing as well and you have these things run in families and you know it has there is a pretty strong sort of you know familial uh relationship there but because there is a strong genetic component but at the same time I I there is there's already evidence that there's an environmental um environmental influences for exactly that reason people with less alals having very aggressive disease and people having a lot of alals having or base repeats having very do or very very little symptoms and and um and so on. So obviously if we find what's what's happening in the environment and we can correct that we can't change our genes but we don't necessarily need to we need to we need to correct the environmental side of that >> and not having proper nutrients not having proper vitamins and you mentioned MTHFR so that can uh you know lead to in inappropriate or uh deficiencies in in folate or B12 and folate you know we worry about in the context of pregnancy because it lead to spinoipida. So we replace that during pregnancy. But that's conditional as well because you folate works with B12 and iron and if you have deficiencies in B12 and iron or one or the other, you will need larger amounts of folate to to do the same job. So if you have less if you have more B12, an abundance of B12 and and iron, then you don't need as much folate. So it can be the same exact thing for anything that if you have enough of these substrate and you and you get rid of toxins that are going to have physiologic put physiological stress in certain areas then maybe the genetic issue doesn't come to bear. Right. And so I think that's >> that's um very important to to remember and think about as well when we're dealing with these diseases. >> Absolutely. I you know one thing that I have I I have done a lot of research um and trying to figure all of this out not only for myself but for my children who have 50% chance of inheriting the disease. I try to get them to eat right but you know they're young teenagers. Um, but one thing that I did notice uh reoccurring is that there's a problem with thamine and there's also a problem with folate >> and a lot of different B vitamins as well. So even though I eat a carnivore diet, I do drink milk and I found found that with the addition of the milk, it really did make a difference in my symptom control. So, it's been really helpful for me personally to have the dairy in my life. I do have uh I do drink whole milk >> and I find that I drink probably about a pint >> or so a day, maybe a little bit more than that. It's like half of half a gallon, I guess, is what it would be here in the United States. >> Yeah, I think. >> Yeah. >> A quart maybe. Okay. Yeah. >> Yeah. >> Yeah. So, that's kind of what I've been drinking. Um, I find that if I don't have milk, then that can cause an issue for me. It's almost like I need that balance between the calcium and the magnesium, that 2:1 ratio. >> Okay. And what what what problems do you get again? Sorry. When you don't have dairy, >> so if I don't have dairy, I notice that I have movement. >> It's almost like um and it's only in my arm. I only have it in my left arm. I don't have it everywhere. I don't have it in my face or anything like that. But if I don't have milk, then I that's what I notice. >> Okay. >> Um and I do notice that there's a thamine deficiency in honey since in honey since disease specifically. >> And so that's kind of why I included that. I think it's Elliot Overton that has like the EO nutrition or it's kind of a supplement that he puts out there and he put out some information about how he was able to help a Parkinson's disease patient by increasing thamine and for me personally I don't want to put any supplement in my body. >> I don't feel like the liver uh absorbs that well or likes it >> and I didn't want to injure my liver further. So instead, I went and got whole milk and it did help so much. >> Good. Yeah, I'm I'm aware of of some of the studies on on thamine and Parkinson's. I know that that certainly the you know a theory out there that that people with Parkinson's don't utilize thamine as as well as they could and so they need far more of it and using very large doses. I think it's something like 4,000 milligrams or something like that. That's crazy. >> That's a lot. So, you know, you look at that and I and I looked at it. I was just like I was like, "Okay, the the normal dose is a lot lower than that." So, I remember looking at that once and looking on like Amazon and like just trying to find what what supplements you could do. I couldn't find one over 100 milligrams and it was like so you'd have to take 40 of those pills a day. you know, pretty wild >> and and if you if you are suffering from Huntington's and you are having a problem, you know, choking down 40 pills is not is no easy task because that's one of the, you know, the the the other features of Huntington. You could you can get um dysphasia. You can have difficulty. You can get, you know, slowed um gastric emptying and and gut motility, things like that. It's very common. >> And so, >> yeah, I think you have to think about buying it in bulk. I think there are ways that you can buy it in bulk if then but then you got to deal with like ladling that out and what do you put it in and all that sort of stuff. Um but uh yeah I I think that's that sort of nutritional medicine side of things you know understanding what the root cause why is this happening to some people and not others even with the same genetics. Um that's really important. That's really important to figure out and if you can understand that and say okay well you have this predisposition but if you do all these things right and keep all that that in check you shouldn't have a problem and and that really is where we need to get to in medicine that we understand physiology of disease and health much better and we can and instead of just saying yeah you have this disease let's let's try to find some sort of medication that does something um okay why don't we figure out what's causing the problem and then we try to fix that and then we don't we don't need anything after that. >> Mhm. >> Yeah. So at at this point um how long have you been at a point where you've gone carnivore? You said you've had a lot of healing. Like how well that that's that's a better question. How long did it take you to to get from your your sort of your worst and when you started taking all the dietary changes? How long did it take your body to heal and get back to a more normal baseline? >> That's a very good question. So, I've been 11 years wheelchair free. >> Great. >> I've been eight years Thank you. I've been eight years uh seizureree and so that was when I started carnivore with the no gap with the plants sorry the gaps no plants diet and uh then I progressed to carnivore shortly thereafter. I would say within a couple of months. >> Um, and so I've been on that the whole time. Um, my seizures, you know, although they stopped, um, I actually went back to a regular diet in 2020. >> Okay. >> And then my seizures came back >> and it was very shortly lived because I was like, nope, going back on the diet. Um, but that's when I went to see my doctor for a checkup. That's when I figured out that everything was gone. So, I was like, back to the diet. >> Um, I would say though, probably um I've noticed differences in my brain. Um, differences in mental health challenges as well. So I would say probably I've been kind of more stable, very healthy, you know, brainwise for the last I don't know, four years or so. >> Um it's it's been a challenging four years though because you know uh four years ago my my husband passed. >> I'm so sorry. >> And thank you. Um but it we were actually traveling at the time. He had converted a school bus >> and um it was a 36 foot school bus >> and I drove it >> after he passed from um Arizona to Texas by myself. So that to me was the biggest like aha moment like wow I've really healed because there were years there where I didn't even drive a car. >> So I would say that my brain has really healed a lot more. It's I feel like it it there's more healing as the time goes by because having seizures like that is really kind of really detrimental to the brain >> and it takes a long time to really heal from that. >> Yeah. Yeah, definitely. But I suppose that's that's important too that people understand that that you can get a lot of improvements but that the body does take a long time. um or it can take a long time to heal and not to get frustrated that well I've been doing this for a couple of months I'm not 100% it could take a lot longer than that but as long as you're getting better that's that's and not getting worse I mean that's that's really the most important thing so um >> and then just being patient and just and just being happy with the fact that you're you're not getting worse and that you are better than than you were and then slowly but surely you can you can keep getting these these improve improvements, which is wonderful. >> Yeah. And what do your what do your doctors have to say about you now? >> I don't see doctors. >> Don't need to. Yeah. Even better. >> I don't need to. >> Yeah. >> I don't need to see any doctors. The last doctor I saw was in 2020 that let me know all of that stuff was gone. Um, I do, you know, feel like, you know, around the time when my husband passed, I had like an increase of cortisol, as widow brain happens to do. >> Um, and it it was something I had to deal with. Um, and that kind of switched up for me a couple of different things. like I felt like um before he passed I was eating a lot of red meat and then after he passed and after things sort of shifted for me I started eating more fish um and now I do like a surf and turf kind of thing. Mhm. >> So, I feel like all of those different changes along the way um kind of also show how I've kind of like shifted a little bit and how I eat to and I listen to my body a lot more than I ever did >> way back when. Um I learned to write a food journal and kind of keep track that way and that's been really instrumental for me as well. So that's something that I always recommend to people that they do that >> so they can really understand their symptoms. >> Yeah, definitely. I I totally agree. I think I think the food diet is is really important and a lot of people can see that maybe they're not being all that strict or they're not being as strict as they think they are and then and they're having symptoms and and they oh no that that lines up every time I I have that thing then that just sort of kicks these things off and it's it's very helpful to do that and and some people with autoimmune issues they have to be even more careful with even with the meat that they eat and so >> they see that oh shoot every time I have chicken you know I I get a bit worse off. So, it's really important to to know that as well. Some people really do just have to stick to just beef, lamb, and water. And other people don't have to. They can they can open things up a little bit. And having that food diary uh allows you to see that and at least have some evidence so you're not just sort of playing, you know, a bit of a guessing game. You write down what you've eaten and how much of it at what times every day. And then you write down your symptoms and how you're doing and uh and you just see how that lines up. So yeah, I think that's a really good idea. >> Yeah, I I I have found that a lot of Huntington's disease patients actually have more of those hemocromattosis type symptoms. >> And it really made a lot of sense to me when I would eat red meat after a time of just eating red meat. It's almost like my autoimmune kind of kicked in and said, "Nope, this isn't going to work for you." And I noticed that I started having more symptoms and still until I added in the milk. >> And then then I noticed that as I continued with that that I needed to hold on to the copper, I mean, I'm sorry, to the iron from the meat. And so that's why I added in shellfish because copper helps uh retain iron and feritin >> and that was very important to me. And ever since I've made those changes really it's been just smooth sailing from there. >> Yeah. Good. Yeah. That that is interesting about the the milk too because um there are a lot of people with autoimmune issues that uh really don't do well with uh dairy at all. >> Um So yeah, that's yeah, I wonder I wonder, you know, if that is the something like the the calcium or or something in there that's that's sort of complimenting things in a really, you know, positive fashion for you that's uh that making you better. That's very interesting. Uh because that's um uh normally people uh don't well with certain autoimmune issues in certain people tend they can have issues with dairy. That's interesting. >> Yeah. >> Yeah. I have noticed that usually when people come to me and they have that kind of problem, then I I suggest sardines, >> you're still getting all those B vitamins that you need because if you're deficient in one, you're deficient in all of them. >> Yeah. Generally, >> and that's really important to know. >> Yeah. And if you get one, if you get really out of balance, disregulated with one B vitamin, you're supplementing with just one >> and the other ones are and that one's really high, you can give yourself a relative deficiency where they don't work. Yeah. >> Well, so that's really important, too. Um, >> pork is another good source of thamine. That's a very good source of thamine, but again, some people don't tolerate it if they have severe autoimmune issues, but most people do. Most people do just fine with it. Um, so yeah, it's very important. And, you know, most people can just eat eat the meat that they enjoy and choose and and uh and do well with. Um, but when you're when you're very sick, sometimes you have to you have to make sure that you are getting everything, >> you know, pretty exacting and and get all your nutrients right so that and avoid things that are that are harmful because, >> you know, you just have a have a lower threshold for things to go wrong. >> And so it's it's uh unfortunately can be like that. you know, I'm I'm um I'm in the position that I can sort of eat whatever meat I want, but I always feel best, you know, eating just beef and and that sort of thing, but you know, there are others that um you know, have to be more careful with it. And so, that's that's a very good point that there are different sorts of things that complement each other and there's different meats and organs and seafood and shellfish that that have different complements of nutrients and and dairy and and that how these these things can all work together. That's a, you know, that's a very good point. I'm glad that you were able to to figure out uh the right combination that that worked for you. >> Thank you. Yeah, it's been a a case of trial and error, but definitely worth it. >> Definitely. So, how's your family doing with all this? Are they are they um are they interested in in what you're doing because you've been so successful with it, or are they just happy for you and and just doing their own thing? Well, my kiddos are happy for me, obviously. You know, they saw me at my worst, you know. Yeah. >> So, my girls are happy for me. Um, >> they don't fully like embrace that kind of lifestyle at this time, but like I said, they're teenagers. >> Um, I always tell them, you know, if this is what their path is like, they know exactly who to call >> and how to fix it. And so, that's really great. Uh my sister has the same amount of alals as I do and um >> she has more of a gluten-free kind of diet, but it's more like she doesn't want to >> I guess, >> you know, when you eat this way, you can't eat this way in front of just everyone, right? I mean, some people can, but it's difficult to be out in a society and have a carnivore diet. Like I went to Texas Roadhouse And I ordered my steak and told them, "Okay, only real butter and just cook it in its own fat." And they came back all confused like, "What?" >> Yeah. You don't want it smothered in like a lot of that, right? No canola oil. Thank you. >> Yeah. >> Um, so she kind of like, you know, her husband's a foodie, etc. Um I can say that I our our experience with the with the end result is different. >> Yeah. Well, you know, >> but you know, but but like you said, it's good it's good for them to know that if they are having problems, you know, you're living proof that you can you can improve that. You can improve upon that. >> Absolutely. um at least they at least they have a way to go because everybody else with Huntington's, you know, that's their lot in life. It's um it >> this is what it's going to be and there's >> we're not going to be able to do anything about it. >> And so, you know, at least at least they have an out whereas other people don't don't realize that they have an out maybe. >> Yeah. >> Yeah. Exactly. And there needs to be an out for them. I just it really breaks my heart to think about I mean because I experienced all that horrific pain. I mean it's it's unbearable pain. It really does make you go out of your mind kind of pain. It's like when people, you know, I hear doctors call it the worst disease on the planet. And I feel like that's exactly true because it's just it is it was so painful. I don't I can't even put it into words how painful it was. >> Um and so when people do come to me, it's almost like they're desperate for relief and they need to know that that's a possibility. You know, I'm the only one out there kind of talking about this at this at this moment in this time that I know of. But I do feel like it's so important to share that story to give them hope because there is no cure. There's no pharm pharmacological cure in my opinion. Um, and that just makes people like move into the space of in Canada for example, they have assisted death. >> And that's one thing when I was in that space that I dreamt of. And I see people talking about how they're going to do that or go in that route of euthanasia. And that just makes me so sad for them because there's another way. There's another path. >> Yeah. Yeah. And it it is >> I wish more doctors talked about this like you do, Dr. Chaffy. I really appreciate that. >> Well, well, thank you. Yeah. I mean, it's there there are there are people out there. I mean, there's a friend of mine, Dr. from Matthew Phillips that had a patient with Huntington's that improved on a ketogenic diet and published a case study on it and so and you know better than any of the medic of the medications and things. There's a direct comparison and and um uh on on how much they improve versus how much you know the medications typically improve and things like that. So it's um you know there are people thinking outside the box and think hey what else can affect this? We we know that neurological issues uh to a certain degree are are improved by ketogenic diets, epilepsy, um traumatic brain injury, just brain development in the first place. And um that these are um that these are these are things that are non-toxic, aren't going to hurt you. And so it's like, well, why not apply them? Why not see what other neurological issues these can improve? um and and understanding that that there are environmental factors even though Huntington seems to be you have a very strong genetic component that it's not one to one it's not 100%. Um and so you know it looking outside the box and looking for root causes and other sorts of treatments that that can actually benefit people. I mean that that's what that's what doctors used to do and are supposed to do actually looking for cures, understanding disease, understanding why something happens and and figuring and if you understand what what causes it, you can understand how to fix it, stop it, prevent it. Now we don't do that. The the the profit incentive, the financial incentive is in treatment of symptoms as opposed to curing the disease. If they came out with a pill tomorrow to pro to stop Huntington's, I mean, they would they would kill it. They would crash it. They would never they would never release it because the medications to treat the symptoms of Huntingtons, albeit terribly. they don't work very well are still going to be much more lucrative than the alternative because you can sell this to people every day for the rest of their life as opposed to selling it once and then that's it. It's over. If you can't if you can't keep selling like if it's something that can keep it suppressed but you have to take it every day. Oh, they're all over that, you know, but something make it go away. No, >> no, that doesn't that doesn't pay the bills for these guys. So, they're not going to they're not going to pay attention to that. They're not going to express interest. They don't look for cures. And we just have to understand that. It doesn't mean that they're bad people. It just means that that's not what they're looking for. They're looking for treatments. Now, there are some bad people. There are people that like sent that that message to Gilead when they they actually came up with a cure for um hepatitis C instead of being a chronic disease you deal with the rest of your life. Uh there's a guy from Goldman Sachs that that wrote to him, you know, one executive that sent a missive that said, you know, you guys messed up. You should never go for cures. You only go you you treat the symptoms. You keep it in in, you know, suppressed or in remission or not. But you give them a treatment that can keep them living with the disease for decades and decades. And that's how you make money. You never cure anything. And they even said, you know, is is curing someone of a disease a viable business model? And of course, the answer was no, you know, because you know, you you shot the, you know, the goose that laid the golden eggs, you know, like you can't you can't stop that, you know, that's that's that's your gravy train. So, they just they're not looking for this. And there are some people that are actively persuading and trying to prevent others from looking for this. Now, that is evil. just not being interested because it doesn't serve you is pretty callous and it's a pretty shitty thing to do as a person, but it's not necessarily evil. But actively trying to stop people from curing diseases, that is evil >> and that that is just awful. And then of course, you know, putting out products that, you know, harm people and are going to cause disease and death and things like that. Those people obviously need to be tried for murder and crimes against humanity like the drug the sorry the um the tobacco industry. You know they lied for 30 years. They lied to Congress. They put out fake reports and papers were paying people off. Those people that were putting out those fake papers. They should be arrested as well. And they were complicit in in in you know mass murder as well. Um this is uh you know that that's the reality. You know, I mean, you you put a product on the markets, you know, cigarettes, that caused disease, suffering, and death to tens of millions, if not hundreds of millions of people over the decades. That's that's a major crime against humanity. I mean, like, well, how are you not, you know, I mean, Hitler killed what 14 million people were responsible for their deaths and and you know, all the all the Nazis were were executed in the Nuremberg trials and things like that. I mean, the the tobacco executives killed way more people than that, >> caused way more disease and harm than that, and lied about it and said, "No, no, no. There's there's no evidence that this is harmful, knowing full well that there was, and they covered that up." So, that's that's intentional harm that they're causing just so that they can make a buck. And then they get fined $200 billion, but they made trillions. So, they weren't even fined the amount like if you you know if you if you are a drug dealer um you know and you get you get busted for dealing drugs, they seize all your assets because those could be all ill gotten gains. You bought that house, that car, everything. They take everything that could have been bought with drug money. Okay. Well, why aren't you taking all that money that was bought with all that tobacco money that that was um bought off the you know the you know the deaths and suffering of all these people? You know, until you until you hold these people criminally accountable for their actions, it's it's never going to change or or or find them more money than they gained. It's never going to happen. So, those people are evil. I I I fully fully believe that though that that that term applies to those people that they knowingly are putting products out that are harming people and hurting people and killing people and they're doing it just to make some money. That is evil. Uh whether they realize it or not, sometimes that's even worse when they don't even realize how evil it is. Um and so but the you know but other than that you know the incentives for people in those industries are to just look for treatments not for cures. Fine. So we need to do that then we have other people independent researchers doctors etc charities um NIH all these sorts of things. Like if we're going to spend taxpayer money on these sorts of things, it should at least be on things that the drug companies aren't going to look for. We should look for actual cures as opposed to, you know, propping up, you know, um, you know, pharmaceuticals and crap like that. You know, they can spend their own money. And, um, you know, if we're going to do that, then we should actually look for actual cures for things. And, um, but understand that the cures are never going to come from pharmaceutical companies. It came once from Gilead. >> Great. >> You know, and for the Hepsi and they stopped it immediately because they were told that was really dumb. Don't do that again. You know, you're going to you make more money doing this. And so, you know, um you know, that was that was the end of that. But, um you know, that's so we just have to be mindful of that and not look for them to just save us. You know, that's what when I was growing up, that was it. And it was like, oh, there's a problem. Well, you know, scientists are working on they'll they'll try to find something. Hopefully, >> hopefully someone find like they're looking for cures. They're not looking for cures. >> You know, they're not even trying to look for cures. And so, you know, we have to cures. We have to figure that out at a root cause level. >> That's true. I do want to say that they are studying nicotine for Parkinson's patients >> and they're finding that the family members who smoke nicotine actually aren't getting Parkinson's. So that's why they're studying it. >> So it's interesting that they're studying that. They're also studying it for tumor control, etc. >> Um, and it really does help because I actually looked it up and it helps to help with oxidation. So like the iron oxidation almost like iron overload kind of symptoms of oxidative stress, it really does deplete um too much iron in the blood and floating iron that you're not getting because you're not storing it in your feritin. You're not getting that copper to store it there. And so it does help with that iron overload, those symptoms that make you feel like brain foggy and kind of like on edge and some of those kind of symptoms as well. So I do find that really interesting. I feel like they're um and you know nicotine is not something you you have to pay for a prescription for anything like that. Um but they're studying patches in particular for that. But they were also studying how people with who are have family connections to other family that have Parkinson's and they didn't get it because they smoke. >> So that's that's really interesting to kind of think about all of that. >> Yeah, it would be. I mean I do know I mean there there are medicinal uses for nicotine. There are harms that it cause. cause I mean causes direct damage to your arteries for example which why you get peripheral vascular disease and cardiovascular disease just because the nicotine even from a patch will damage the arteries directly. Um I actually have two patients um that have the older patients that had Parkinson's and um it was actually the brother that smoked that actually has the far more progressed Parkinson's and he was a heavy smoker for decades. >> So I haven't seen that personally. I do I do get concerned or apprehensive around the the the push for nicotine. Um yes, it's not on patent, but it never was, you know, but they're still making trillions of dollars on nicotine because is the tobacco companies that run the nicotine cartels, you know? I mean, they they they're the ones doing that. And so they own all the patches, they own all the the vapes and all that sort of stuff and the cigarettes. and they they are the ones who started this whole push out fake um studies to to say how great cigarettes are and that they're safe. And so I get concerned about that. I get very, you know, because they they they sneakily paid people without disclosing that they were being paid to do um research for nicotine. So unfortunately, you you can't just trust that, oh yeah, this person has no stated conflicts of interest and their money didn't come from tobacco. >> That's true. >> So thing like you don't know, could very well have have done that anyway. Um, and then some of these ones, um, I see people online saying that, >> you know, tobacco has, you know, for for, >> you know, for cancer, like for GBMs that there's a they said there's a study that they gave people nicotine and it and it, you know, killed the GBM in 2 days. I've never seen that study. I've looked hard for that study. I've never found that study. I've used AI search engines like that were specifically geared for research. U they can't find any study like that. They can't even find a case study like that of a single person that they've done that. Um when I've asked this person, when I've asked in the comments, when I've sent them DMs, when I do those sorts of things, never get a response. No one can show me where that study is. So, but it just gets repeated and repeated and repeated until people just believe it. And that's that's just, you know, that that's just a normal marketing tool that the more you repeat something, the more believable it is because you just keep hearing it from all these different different angles. Um, but without any evidence being provided, you know, and um, >> so I get I get a bit concerned of that. I mean, there there to be clear though, there are medicinal purposes to nicotine that are well established, but it's something to be >> taken in a very circumspect manner because it does have harmful consequences as well like like direct arterial damage and um and so >> yeah I would be I'm very interested in in these sorts of um things when they when they have like robust evidence behind them. Um and so that'd be interesting to see if that lowers things down for Parkinson's. I mean, I have patients with GBMs that are smokers and it's like they they're actually they have more aggressive tumor progression if anything. Um, and that's generally the case with cancer is that smoking is a is a cancer risk and generally um has worse outcomes uh on on large populationwide scales. And so obviously smoking is different than just nicotine on its own. But some of these people are saying smoking, you should smoke. And it's just like that that just seems so suspicious to me that um you know because they you know the tobacco companies make the same amount on it now. It's not like they you know they had a patent on it and then they want to make that patent now have another patent. They've been making the same amount on on tobacco the whole time. There was there wasn't a patent on it you know. So but that that that is their bread and butter. And the and the tobacco industries in the 80s were the largest companies on earth and they bought up all the other largest companies on earth. all the processed food manufacturers. They became the largest processed food manufacturers in the world for a fraction of what they paid in fines. I mean these guys were horrifically wealthy. You know they they bought like craft and these other things for like4 billion5 billion. They paid $200 billion in fines, right? These guys are bloated. And so, you know, they own the processed food industry, which is heavily invested incestuously related to the the pharmaceutical industry. So, I don't know, you know, Philip Morris's ties to, you know, the big drug companies, but I it wouldn't surprise me if they're related. And you know just because you know tobacco is not or or nicotine is not um not on patent and it's not a drug that you know I don't think that you know the pharmaceutical company's scared of nicotine. Oh I don't want this natural cure out there. People are making just money just fine on nicotine. Um like it's so that I don't think that's it's not like it's going out there for free. It's not like the dietary thing where you just don't buy bread and that's the treatment you know. So you're actually saving money because you're not buying >> more crap. There is a product that you have to buy. So there is a profit incentive to push that out. And I just get very very wary when things like that on nicotine and because that's the tobacco companies and they're the ones who started this sort of propagandistic sort of influence and marketing to say their products are good and healthy and cures cancer and does all this sort of stuff um in the first place. and um and you know, we know how that turned out, but then we just sort of ignored it for the last sort of 30 years and now it's starting to come out again. Oo, nicotine's so great for you. I'm I'm you know, I'm I'm a bit suspicious though, I have to say. >> Yeah, >> I'd be interested to see that research as well. I have seen research for Parkinson's in particular, but >> you know, I'm not a doctor like you, so I don't really know like, >> you know, where this is coming from, etc. It's more like a feeling that I have, >> which that's the intuitive part of me that has led me down all of these roads >> to where I am now. Yeah, >> I do feel like there's probably something there that does help because when you look up nicotine in particular, it does decrease the iron content in the blood. >> And that's exactly what people with Huntington's and Parkinson's really struggle with that oxidative stress >> that really occurs where the the iron just kind of floats around. which is why I kind of went into that area of making sure that I'm eating shellfish and I'm eating meat red meat at the same time >> so that I can make sure and store that iron properly so it's not floating around. >> Yeah. Yeah. Well, that's good. Um well, yeah. So, thank you so much for taking the time. I really really appreciate that. That was it was so great to hear your story. Where can people find you? Look at your page. look at your story and and and see the before and afters and and and see like how much of a massive improvement that you've that you've made over the years. >> Uh well, that major story is really on genetic canary on YouTube. That's my name. Uh I named it that so that people could understand that just because you have a genetic something doesn't mean that it's going to stay there forever. It's >> just kind of like a warning symbol, >> you know, to kind of make sure and take care of your body and make sure you're as toxin-free as possible. >> Okay, great. And there's um you have a website or Instagram or anything like that or just the YouTube? >> Yeah, I'm on Instagram. Um I have Tarot of the Nines with the number nine. Um that's my Instagram that I'm a medical intuitive and I'm here in Sedona. I work at Crystal Magic Psychic Center and I try to help people move more toward a carnivore path. But of course, I take um you know religious considerations into consideration when I'm trying to give information. I usually look at the people's astrology chart. For example, my astrology chart is ruled by Mercury. >> That's thamine deficiency. Mhm. >> So, every single aspect in the medical astrology chart, I look at it for nutritional deficiencies >> and what that all means and I pair that back to the old time teachings of Manly PE Hall and it's very very accurate. >> Okay, great. >> So, I I do my best to help people to help them in any way I can. I usually help people for free off of my channel on YouTube as well. >> Well, that's very kind of you. That's really good. Well, Cecilia, thank you so much for coming on and um it's been an absolute pleasure. I'm so glad to hear you're doing so well. I'm so glad to hear that you're sharing this with others and hopefully that will um you know, lead more people here and and and to a better life. So, thank you so much for that. >> Thank you. Thank you so much for this opportunity. I appreciate you. >> No problem. And thank you everybody for watching. I really appreciate it. Please do leave a comment down below and tell me what you think. And please like and share uh especially with someone that you know that has a neurological issue or if you know anyone with Huntington's, please do send this on to them cuz we need more people seeing this and and understand that there might be something that they can do and at least trying it for themselves to see. And if you haven't subscribed yet, please do. And I'll see you next time. Thank you very much. Hey guys, thank you very much for taking the time out to listen to what I had to say. If you like it, then please like and subscribe to my YouTube channel and podcast. And if you're on YouTube, then please hit that little bell and subscribe, and that'll let you know anytime I have a new video out, which should be every week, if not more. 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